← Return to POTS Part II: Treatment

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@spoeps

Hi I'm new to using Mayo Connect so I'm not sure how personal our questions can be. I was diagnosed with EDS and POTS and fibromyalgia. I've exercised my whole life and continue to 5-6 days/week. I walk, run (if I can avoid falling/tripping), or stair climb for 30-45 min/day and strength train 3-4x/week. I am very very fatigued after both cardio and weight training even though my goal is always progression. I am a physical therapist and focus on stability and joint protection throughout. I do not focus on my heart rate or blood pressure but most of the time feel intense pounding (chest and abdomen) and difficulty breathing (very winded) during even light exercise. I've vomited during cardio and weight training but always finish my session. I use to faint during exercise and am constantly fighting numbness and weakness throughout my body during exercise. The mental lift I get from exercise is motivating. I can feel some adrenalin. However, before and after exercise I feel like my body wants to shut down. I'm objectively very weak and winded all day. My eyes want to shut and I want to fall asleep. I rarely sit throughout the day only occasionally and limit time if I can. I can't help but notice how much moderate exercise negatively impacts my strength, breathing, alertness/ability to think, balance, etc. I also know that if I stopped exercising I wouldn't be as functional as I am. My question after all of this is: Is it common to feel like your body is shutting down for the rest of the day after exercise with these diagnoses? I get maybe 20 minutes of normal energy levels after exercise and then feel drained intellectually and physically for the rest of the day Also, before my diagnosis I was LOSING cardiovascular endurance and strength despite keeping the same routine. I never stopped, but no matter how hard I try, I keep losing function, endurance, and strength. Is that common in EDS and POTS patients who were athletes their whole lives?

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