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@petuniamom567

Can the CKD mentor please tell us why no nephrologists seem to even discuss diet. My nephrologist is a medical
school faculty member and does not discuss diet. What we eat in stage 3 CKD is very important. Why are patients
left on their own. CKD is a serious disease. Patients should be doing everything possible to avoid the disease's
progress. We should not have to go diet hunting on the internet. All of this is discouraging and frustrating. It
would be wonderful if Mayo published a basic diet for each CKD stage. We look to Mayo for intelligent, caring,
practical leadership. Please think about this.
Petunia's Mom

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Replies to "Can the CKD mentor please tell us why no nephrologists seem to even discuss diet. My..."

@petuniamom567 There are nephrologists who will discuss diet, but I have found that referral to a renal dietician, or nutritionist seems to work better, as that person has more access to the latest information available.

To be frank, each person is different. While it would be wonderful to see a basic diet for each stage of CKD, what will work for me may not work for you. I may have different contributing factors or co-morbidities [for example, diabetes, high blood pressure, gout], which will make parts of a "standard" diet moot. Each patient needs to be their own advocate, and take responsibility for having the best/most successful diet for them. When we look at lab results, it is best to look at trends, not relying on a specific date's results, which will give us a better overview of our situation. For me, looking for the best diet tips and how to tweak something that fits me as an individual, is being proactive, and I get satisfaction knowing I have a hand in my own care, not relying on someone else completely. If I had chosen to follow a diet set for each stage I was in, rather than following a strict renal diet for the last 10+ years, I am sure my Stage 5 now would have progressed a lot sooner than just this year!

In general, the components we as kidney patients look out for in our diet are: sodium, calcium, potassium, phosphorous, and protein.

Here is a link to Mayo Clinic's suggestions for ideas for a renal friendly diet: https://www.mayoclinic.org/healthy-lifestyle/recipes/kidney-renal-diet-recipes/rcs-20522796
As to phosphorous, try here for information: https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/expert-answers/food-and-nutrition/faq-20058408
The National Kidney Fund likes the DASH diet: https://www.kidney.org/atoz/content/Dash_Diet

What have you found is the best for you?
Ginger