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Longtime caregiver looking for support and coping tips

Caregivers | Last Active: 44 minutes ago | Replies (102)

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@nrocpop

I am so sorry you are experiencing that. My family has, too. Hospice is BS. They promote it as you having a lot of quality time with family but they really don’t do anything. They just pop in for a second now and then. I cannot figure out all the people that tell me and leave the family to do all kinds of medical care that they have no training and no experience with. They disappear and leave you feeling totally helpless. I have read that hospice is the most profitable sector of medical care. I cannot figure out the people that tell me, “Hospice is wonderful.” It is a NIGHTMARE but it is real. I am sorry that you, too, are abandoned and struggling. I don’t blame you at all for having a tale of woe. It sounds totally overwhelming and like you have little practical help or support. I fear that this happens to many more people than we know. I do not even know what to suggest. People that are super wealthy could hire helpers but what about regular, average people? I can tell you that I would have felt much happier with some person or people to actually help … more than a listening ear or an hour here or there. There has to be a better way

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Replies to "I am so sorry you are experiencing that. My family has, too. Hospice is BS. They..."

We had the same experience with hospice in Mass. In fact we fired them because they were so bad. We paid some workers at my mother-in-law's nursing home to take care of her and they did 100% better than hospice.
now that my wife has dementia and I'm pretty much by myself, so I'm scared about the future