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Liver transplant - Let's support each other

Transplants | Last Active: Jun 7 7:51pm | Replies (1594)

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@rosemarya

@goatgirl - I had the same thing happen to my kidneys while I was waiting for a liver transplant. They failed suddenly and the diagnosis was hepatorenal failure. I spent 5 days in ICU before I was stable enough to be accepted and flown to Mayo Rochester for possible cholangiocarcinoma diagnosis. I needed dialysis until I transplanted a liver and a kidney in April 2009.
Your blood draws will gradually be spaced farther apart. I have my labs every 3 months, and my immunosuppressant meds are at a lower level than they were earlier. Your doctors will be closely following your labs and your Tacrolimus level. The goal is to have a level that is high enough to protect your new liver from trejection, but not high enough to be toxic. It is a delicate balance. I also take cellcept, and it is measured with labs diring my annual evaluation. Immunosuppressant (antirejection) meds are to be taken for life.

I understand your anger, and your feeling guilty with anger, and your rejoicing. Believe me when I say that anything is possible as a reaction. It is possible that some of the feeling are magnified by medications. It is okay to mention this to your transplant team for their opinion.
Alcohol is a 'No' for liver transploant recipients. I have adjusted, although I do miss a cold beer with pizza! And I am the gal who has iced tea at a wine pairing dinner.

I'm happy that you have joined Connect. I hope that my brief message brings some comfort. What are some of the normal things that you used to do ?

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Replies to "@goatgirl - I had the same thing happen to my kidneys while I was waiting for..."

Thank you for all the information on what to expect going forward. My family owns a very busy Swedish restaurant and bar and retail stores, I also own a small vacation resort,,,going on buying trips take all the energy I have, had trouble going all day to showrooms, I have cleaned solo for 22 years a house, suite and two cottages, can no longer do the house, just no strength, and working at the bar has left my anxiety around crowds now making me anti social where it was what I looked forward to doing every weekend! I ran 5k and 1/2 marathons, I now walk a 5k but hurt the next day…my boys are grown so thank goodness I don’t have little ones that I have to try and keep up to….I know it’s only been almost 2 years but life as I knew it will probably never return and this gets me depressed every time I think about it. Thanks for asking and listening…I don’t know if I’m the only one whose having trouble adjusting but I feel like I am…