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Longtime caregiver looking for support and coping tips
Caregivers | Last Active: 1 hour ago | Replies (102)Comment receiving replies
Hi @deek15redpeppers, it sounds so overwhelming and sad, emotionally and physically draining, no wonder you are crying. It sounds like you're more on your own than you're getting support from Hospice. Does Hospice offer any kind of respite care? Are there any friends where you live who can stay with your wife when she sleeps during the day so you can take a break? My thoughts are with you.
Replies to "Hi @deek15redpeppers, it sounds so overwhelming and sad, emotionally and physically draining, no wonder you are..."
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I do have friends coming to stay for an hour, sometimes twice a day, so I can go exercise or run errands. That helps a lot, but the days still get long. Hospice has respite care for 4 nights and 5 days, but it can only be used once every quarter or some such. I would really like to use it so fly back to our house in MN, but need more than 5 days to make that worthwhile. Something might work out in the fall when our snowbird friends come back and they might stay with Jenny a couple of days. Thanks for your thoughts