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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@demidio

Thank you for your kindness and information. She is still processing and afraid. Its hard to plan her life when she has no idea how much this will effect her future. She is having trouble working with all the pain and anxiety but afraid to loose insurance if leaving job. The ranges of sfn are so extreme. Do you know if most people with sfn have flare ups for a certain amount of time or its every day coping with the symptoms?

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Replies to "Thank you for your kindness and information. She is still processing and afraid. Its hard to..."

@demidio Hi there, I'm Rachel, it's nice to meet you. I wish you weren't here under such circumstances for your daughter.

May I ask if your daughter has a cause to her SFN. Did the neurologist find the underlying reason or is it idiopathic?

Hi @demidio, I'm not sure but I think there can be times when the neuropathy has flare up and some days are better than others. Hoping other members can offer some suggestions for you. I don't have the pain but I do have the numbness. There is another discussion with current posts discussing a possible topical that may help --- Vick’s Vapor Rub for Neuropathy Pain: https://connect.mayoclinic.org/discussion/vicks-vapor-rub/