Already used that route but sadly there are no LLD in my area who take insurance, most require at least 800 out of pocket per appointment and I literally do not have that whatsoever. Infectious disease actually denied a referral given by my GP for the western ot "not being positive" as only one band showed up, however that test was administered 2 years after the rash. Trying to explain this did not get me anywhere.

Currently I am waiting for some cromolyn in the mail to see if I can make some headway with the nose spray battle, I currently have a bottle of semi diluted phenylephrine and will slowly begin to dilute the Afrin bottle as well, as the afrin has completely stopped working and I had to move onto the phenylephrine anyway. my hope is that by slowly diluting the afrin while using in conjunction with an already diluted version of phenylephrine that I plan to continue to dilute by one drop of saline a day, while introducing the cromolyn (which has a tendency to take a while to begin taking affect) I can actually do so successfully this time. It's only the deviated nostril that's hopelessly dependent, the other one can take significantly less of the meds with a pretty decent effect. Already noticing I'm having to take it a bit more frequently but that's a sign that it's working (at least it was the sign the last few times I got halfway through)
I think it's just going to take a very long time and I think I'm going to have some relapses during inflammation flare ups but hopefully the cromolyn will remove that complication from this scenario.

As for ENT, it was confusing, the first nurse who looked said there was literally no way Afrin use couldve possibly caused the nasal problems I have because they arent located in the nasal cavity, it is chronically swollen adenoids that as far as I'm aware, has no evidence of rebound effect, as well as a deviated septum. She of course still agreed that getting off afrin would be best and I absolutely agree, but this problem likely will have a surgical answer. The next doctor I saw at that practice after a prednisone regamine dismissed it completely, said they looked fine, and that i need to stop the afrin cold turkey... that's just not realistic for drug dependencies. The only thing I agreed with him on is that he didnt feel comfortable doing surgery on a deviated septum while dependent on afrin because it changes the anatomical structure of the nasal cavity, and I can absolutely see how that would cause complications that I think we would both rather avoid, I just wish he has given me the headsup to give cromolyn a try back then, I found out about it through MCAS groups, and since so many of my symptoms are alleviated by benadryl, its worth the shot to guess that they could be related, and heck, if the cromolyn works here, I can bring that up to some other docs to maybe get the oral route and see if that could possibly have anything to do with the abdominal pain I have. Just kinda butthurt that flonase and those steroid sprays did quite literally nothing for how expensive they are.