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I'm trying to find out as much info as I can on my own as My Primary MD knows little about Complex sleep apnea. My ENT tried 2x to reduce my Turbanines unsuccessfully and recommended I see a Neurologist who specializes in sleep apnea. Appointments are few and far between. My sleep Doctor covers a large area and is difficult to get ahold of. I have never been told I could control my own pressures. If I call about an increase in events I have to take my machine into a supplier. Raising the pressures never seems to help much. I am always tired. I was hoping to chat with someone who conquered Central Sleep Apnea with use of the machine and good fitting mask and sleep positioning. My problems would be solved!
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I'm not familiar with Complex sleep apnea but I saw in the information that one of the alternative treatments is a bi-level pap (bi-pap). I just recently started using one after having a c-pap for 3 years and it has been a game changer for me. The pressures can be set for both the inhales and exhales. It took me almost 3 years to understand and be able to articulate what was happening. I would wake up feeling like I was being suffocated with a lot of pressure and tightness in my chest. (Heart issues were eliminated) Within just a few minutes of use I could tell the difference and knew that we had found the answer. When I was able to explain that I couldn't push out a breath, was when the pulmonologist suggested I try the bi-pap. I have energy again and sleep comfortably all night. I hope you find an answer soon.
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You mentioned your ENT tried to reduce your turbanines. Do you have difficulty breathing through your nose?
The reason I ask is that I have a deviated septum and met with an ENT at Mayo who explained all of the options for treatment, one of which I think was what your ENT tried. After he explained the risks involved and that it could make it worse, I opted for the alternative to surgery and am happy I did. He prescribed a Mayo Clinic proprietary nasal spray. The 3 ingredients are Mometasone to reduce inflammation, Ipratropium to reduce nasal drainage and Diphenhydramine which is an antihistamine to help reduce nasal drainage. The product description on my prescription is MOMET 0.033% – IPRA 0.02% – DIPH 0.02%.
The nasal spray worked really well and I used it for about 3 months along with a twice daily nasal sinus rinse. I transitioned after that to using a twice daily nasal rinse and recently switched to a stronger rinse using Xylitol after doing a little research -- Xylitol nasal irrigation in the management of chronic rhinosinusitis: a pilot study: https://pubmed.ncbi.nlm.nih.gov/21994147/.
I've also used a Hypertonic saline rinse which works well but was a little strong for my nose -- Hypertonic Saline Versus Isotonic Saline Nasal Irrigation: Systematic Review and Meta-analysis: https://pubmed.ncbi.nlm.nih.gov/29774747/