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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@gingerw

@mjlandin Welcome to Mayo Clinic Connect.

There are several discussions here in the Blood Cancer & Disorder group that speak about MGUS:
https://connect.mayoclinic.org/discussion/mgus-and-quite-high-free-kappa-light-chain-and-kappa-lambda-ratio/
https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/
From the Mayo Clinic website is this information: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362

From the International Myeloma Foundation is this very informative article: https://www.myeloma.org/what-are-mgus-smm-mm

For my case, I was diagnosed with MGUS thanks to an observant nephrologist [kidney disease unrelated to MGUS]. It then advanced to smoldering multiple myeloma, in a short time, which is very unusual, and in a year advanced to multiple myeloma, again unusual. I will say my health journey has never been normal, so why should I stop now? The vast majority of people live for years with MGUS and no further complications, going through quarterly or semi-annual bloodwork for monitoring values.

Feel free to ask away!
Ginger

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Replies to "@mjlandin Welcome to Mayo Clinic Connect. There are several discussions here in the Blood Cancer &..."

I have it. I just found it on my chart and don’t know what to do next.