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If you are referring to IPF, yes that is the diagnosis I have had. I'm taking OFEV. I also have had stem cell therapy. So far the IPF seems under control and my situation is stable, for which I'm thankful. The best to you.
Replies to "If you are referring to IPF, yes that is the diagnosis I have had. I'm taking..."
@robinson when referred to as IPF doesn’t that mean you don’t know what caused the fibrosis? We do know what caused my husband’s. It was working in carcinogenic environment most of his life. He’s 76 yrs old. I would guess the symptoms & treatment would be the same either way. Are you experiencing no side effects from the olev? I’m not familiar with stem cell therapy. I’ll research it. Thanks for your info!! I wish you the best!!
I also have IPF and am interested in stem cell therapy. Where did you get it done and was it sucessful?
I have been taking Esbriet for the last six months and hsve had minimsl side effects. Had a breathing test yesterdsy and my Pulmonologist told me my breathing has improved since the last test. He stressed that even if there was no improvement, the fact that it has not got worse is what is important. IPF can progressively get worse. Stabilization is good - progression.
Please let me know about the stem cell treatment received.
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Yes, I'm struggling with diarrhea, too.