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Thank you for your reply! My husband was diagnosed with chronic inflammation and fibrosis at Mercy Hospital in Ft. Smith, AR. They sent his biopsy to Mayo for second opinion & it came back exactly the same. I read on Mayo website that the only meds they mentioned have some BAD possible side effects like liver damage. So it’s scary! His condition is he is not oxygen dependent. Just doesn’t have energy to move around much & no appetite!! We’ve addressed the chronic inflammation by giving up the stressful lifestyle/employment, staying out of the carcinogenic environment that he has spent most of his life in, & changing diet to mostly non-inflammatory foods, & taking anti-inflammatory supplements. It’s only been 2 weeks since his Dr received the 2nd opinion diagnosis from Mayo.
Replies to "Thank you for your reply! My husband was diagnosed with chronic inflammation and fibrosis at Mercy..."
@ligreen ,we found out in February, that my husband has idiopathic pulmonary fibrosis.I feel the same as you it is scary.My husband,is on OFEV and is fixing to start his 3rd round of it and when last week for his liver test and so far so go.The only side affect so far are mild nausea no appetite and some diarrhea.I try to read all i can on this disease so i will know whats normal and what isnt.I Just hope one day they find a cure but for now we will keep fighting this disease one day at a time.
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@ligreen Hello. I am sorry to hear of your husband's diagnosis. I do not know a great deal about pulmonary fibrosis except that it is serious and is progressive. I am battling a different lung disease myself. Mine is serious and progressive also, but more easily managed than P.F. I can sympathize with your husband in having a lack of energy. Same here. May I ask what his dr is recommending to him for treatment? Also, will you please tell him that I am thinking of him and wishing him the best. That goes for you too. I know that his diagnosis affects you also. If you need help researching P.F. or have questions, I am here for you and can help look things up.