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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@cognac

wba3721 You sound exactly like me. All I can say is I understand. I've been like this since 2014. I'm not taking Esbriet or Ofev because I fear the side effects, plus I understand it's very expensive. Nor am I going to Pulmonary Rehab because it's never been mentioned. Does it help you? PLEASE respond. Good luck in your research. cognac

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Replies to "wba3721 You sound exactly like me. All I can say is I understand. I've been like..."

Yes, Pulmonary Rehab helps. Tiring while doing it, but feel much better after. I mainly do the treadmill, ride the bike and do some weights.

I actually look forward to going.

Hi. I just wanted to respond to your post as I wanted to let you know that the meds you have listed; I am only familiar with one. My husband was diagnosed in May with IPF and elected to go on Ofev. We finally finished the paperwork and got approved from the manufacturer of Ofev to receive the medicine free of charge. There are many grants that are available to you depending on your income. In our case, we had to go directly to the manufacturer and were qualified. We received the meds and within the first month, my husband was feeling much better and his breathing test increased by a large number. He had the overnight test for oxygen prior to taking the meds and tested positive for needing oxygen during the night. After being on Ofev for a month, he had an additional test and he did not need the meds. While I understand that medicine for one person is not the same for another person. I just wanted to let you know that some meds do work. My husband who could not go out to pick up the paper and be exhausted can not do so many things that he had not been able to do. Ofev may not be the right medicine for you but I would encourage you to try something that will slow the progress of the disease; while it may not be a cure, it can certainly make ones life easier and the quality of life is so important with this disease. I being the wife hate seeing the degradation the disease causes; I also rejoiced at the sight of him feeling so much better and returning to the man I married. With that said, I hope you will give some thought to the medicine that is available to you. Best regards. A loving wife.