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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@rnlorena

@joypalmer1 I have been diagnosed with small fiber neuropathy (idiopathic). I retired from work in March of last year and woke up two days later with full onset pinpricks all over including my eyes. Mine is non-length dependent because it started all over my body. I had no idea till I saw a neurologist. I had the two vaccines in January with the last one on Jan. 29th. It was the around March 10th that they pinpricks started. I had a lot of testing done and the only thing that was positive was the skin biopsy for SNF. I did not consider the shots at all till recently. I asked the question of many people when after the shots did you experience issues. Some right after the shot and some not till weeks later. I wonder the same thing about the shots but I went in to see the ARNP for gastroenterology and she told me that since Covid started that a lot of people have ended up with gastro problems she thinks are related to the shots. I asked the neurologist on my first visit how many patients that he had woke up with full onset like I had. He said NONE. It is rare. I have since had the boosters and will continue to take them if they are offered. I believe in taking the shots. You can google things regarding the covid shots and symptoms. There is a group on Facebook that talks about it. I have done a lot of reading about it. I am a retired nurse and I have a firm belief that knowledge is good if you have something. I have a friend that said they take a certain medicine but don't know what it is for. I have another one that doesn't want to know certain things from her Doctor. I have seen that a lot over the years in patients. I want to know everything I can about this issue that I can find out. The neurologist checked me for a lot of the usual autoimmune diseases, genetic testing, heavy metals, vitamin B level. I had a brain scan. I have had other tests too. When they tell you it is idiopathic meaning no known cause that is difficult. People want to know. I write down questions that pop in my head and also after reading things about SNF. Good luck to you in your quest to find out information.

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Replies to "@joypalmer1 I have been diagnosed with small fiber neuropathy (idiopathic). I retired from work in March..."

Thank you so much for all your information. I appreciate it. I will continue to try and find out more about my condition. One neurologist told me small doses of neurontin help and also small amounts of CBD gummies.