@wba3721, Hi there. I am glad that you found Connect. I am a mentor for another lung disease group (Mac/Bronchiectasis) which is what I have. I do not know a great deal about the various types of Fybrosing lung conditions, but I know a little. I see a pulmonologist at the Mayo Clinic and I have asked him about stem cell therapy. He said the stem cell clinics that are charging people $9,000-$12,000 are bogus. That there is a reason that insurance does not cover it. Those treatments supposedly do not work. Please do not give up all hope that stem cell therapy won't be a possibility in the near future because things are changing raipidly. The Mayo Clinic in Jacksonville, Fl. has started new construction on a building that specializes in refurbishing lungs that would have in the past been unsuitable for transplant. They are also working on research to use one's own t-cells in refurbished lungs to cut down on rejection. If you do not already own one, I would suggest buying your own pulse oxometer or have dr prescribe one for you. They cost like $21.00 online w/out a script. That way, you can keep tabs on your oxygen levels. I am here for you if you need help researching anything or just need an ear. I hope others with IPF will jump into our conversation and can offer you tips. -Terri