← Return to Anyone had disseminated intravascular coagulation (DIC)?

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@suzieq612

Wow, I too developed DIC after a c-section. Mine wasn't caught as early though. I began having pain while at home from the hospital on day 3. It hurt to sit and by day 8 I couldnt urinate. I stood up and started bleeding drastically. I got to the the ER and went into shock and collapsed from blood loss. I too had to have an emergency hysterectomy as they couldn't stop the uterine bleed. I received 4 blood transfusions and ended up in the ICU for 4 days before going to the peds floor (so family could bring my baby to see me). I developed a painful post-op ileus due to the surgery. I had my tubes, uterus and cervix removed and required iron transfusions. I was weak for a while but as far as fatigue, brain fog, memory problems etc. I have had that for years with my autoimmine diseases so I dont notice it as new. I too have been diagnosed with PTSD from the event. It seems like no one understands it, nor asks or allows me to talk about it. Like it was too scary for them that I almost died.

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Replies to "Wow, I too developed DIC after a c-section. Mine wasn't caught as early though. I began..."

Welcome @suzieq612. Your experience DIC after C-section sounds remarkably similar to @kbreder's.

May I ask how long ago this happened? What triggers your PTSD?

I completely understand that!! People are too freaked out by what happened to listen. It's like you have to walk on egg shells in fear of everyone else's emotions and everyone forgets that your body went through it, you need supported. That's been one of the hardest parts of this healing journey. I found an amazing therapist though and she has helped so very much by just being someone I can vent to. I have to have the hysterectomy finished next month. They only took my uterus originally. I'm hoping that will help any remaining symptoms.
Cam I ask what autoimmune disease you have? I have fibromyalgia and POTS, just curious if there's ever been a correlation between autoimmune diseases and post partum hemorrhage.