Hi @msfins, this is Gerry P’s wife. I would like to emphasize something you said, which is that you thought you’d have the transplant and everything would get better. I too had that assumption and as a result found the complications that followed his surgery really hard to deal with. “Haven’t he already suffered enough?” “Is this going to be the way the rest of our life unfolds?” We are relatively young and this last question really weighed on me and made me incredibly anxious. The advice of another transplant wife really helped me, so I’m passing it along. She said to think about all the trauma the body goes thru in receiving a transplant. It just takes time for everything to settle back down and heal. It takes time to get the meds sorted out. Thinking longer term about his convalescence and lowering my expectations for the short term really helped. Also allowing myself to acknowledge the grief and fatigue and just sitting with it for a while. It takes such stamina to get to transplant- give yourself the gift of time on the backside too. Best wishes for a steady upward recovery. Lynne
Ps- Gerry really is doing so much better at the 3 month point. If you’re in the Jacksonville area, we’d be happy to meet.