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My husband was just diagnosed with IPF and we are just now trying to digest what this means. He has all of the symptoms in the brochures we were given except the fingers and/or toes becoming flat on the tips. He will be starting on one of the meds as soon as it arrives. I will be checking into this group to learn anything I can about what to expect as this disease progresses. Sad to be writing this. Fran Eaton
Replies to "My husband was just diagnosed with IPF and we are just now trying to digest what..."
Thanks for your post. Yes, he plans to join this support group. He has been reading the post on my tablet.
Hi Fran, I'm glad to hear that your husband is also part of these discussions. I removed his email from your post. I did this because Connect is a public site and I don't want his email shared publicly. See the Guidelines on using Connect Safely here: https://connect.mayoclinic.org/page/about-connect/tab/community-guidelines/
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@frane1939, I am so sorry to hear of your husband's diagnosis. As a patient of a serious lung disease myself; I know from experience how miserable it is when your breathing is impaired. Is he open to being online and participating in this support group? Many of us find it very helpful. I do know of two others on here with IPF. @bleo and @keira. Hugs to you and your hubby. -Terri