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@shack76

I find it's especially true become important to educate myself as much as possible about the conditions I have because it's essential in choosing who to go to. This seems to be especially true with autoimmune disease, because not all doctors understand the various complications that can happen with them.
I didn't start earlier enough this time and have made a few chooses that I wish I hadn't. Granted, Covid was complication there was not play book for, and the country was still in the middle of the medical shutdowns when this all started. Add to that the rarity of achalasia this has been a far from ideal situation.
When my mother picked from the airport after arriving home from the east coast the first thing she said was, "Where did you leave this time?" She was referring to my four-leave clover. She's an immigrant from Ireland and doesn't think I'm luckiest person in the world.
I don't know I feel compelled to post my mother's joke, other than to say humor can lower anxiety to some degree.

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Replies to "I find it's especially true become important to educate myself as much as possible about the..."

stay upbeat. we are always our own best advocate .
what covid showed most is how limited doctors are in their own work environments and limited to the extent of trying something new beyond of “known”. remember that and it will take the anger away. then your task is to find a place if care where pushing the envelope of what is known is accepted as the norm. with that though we have to realize tgat some treatment and drugs may be out of picket at first. i have found a magical phrase that seems to be helping - “ wow while that sounds interesting i cant afford it- so somehow you are going to have to figure our more cost effective approach”. suddenly i find that tge $1000 a month shot is bow $10 for the sane shot. what this phrase ends up doing is causing the pharmacy and doc to work together the paperwork required to get insurance approval. then you recognize a healthcare team that wants to care for you!