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@johnbishop

Hello @shack76, There is no doubt that you've done a lot of thinking and research on your condition. I can't begin to imagine how much effort it takes to keep from being overcome with anxiety. You mentioned that your last swallowing study shows the achalasia is getting worse again. I did find a list of actively recruiting clinical trials -- Achalasia Clinical Trials: https://www.centerwatch.com/clinical-trials/listings/condition/248/achalasia/.

Have you considered looking for an actively recruiting Achalasia Clinical Trial?

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Replies to "Hello @shack76, There is no doubt that you've done a lot of thinking and research on..."

I find it's especially true become important to educate myself as much as possible about the conditions I have because it's essential in choosing who to go to. This seems to be especially true with autoimmune disease, because not all doctors understand the various complications that can happen with them.
I didn't start earlier enough this time and have made a few chooses that I wish I hadn't. Granted, Covid was complication there was not play book for, and the country was still in the middle of the medical shutdowns when this all started. Add to that the rarity of achalasia this has been a far from ideal situation.
When my mother picked from the airport after arriving home from the east coast the first thing she said was, "Where did you leave this time?" She was referring to my four-leave clover. She's an immigrant from Ireland and doesn't think I'm luckiest person in the world.
I don't know I feel compelled to post my mother's joke, other than to say humor can lower anxiety to some degree.