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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Feb 17 4:40pm | Replies (186)Comment receiving replies
I've had this horrible problem since 2007 following a severe sinus infection. It took doctors 2 years to diagnose it. I was tested for GERD, asthma, allergy, all negative. I have had mild success with Gabapentin (300mg/3 per day) combined with Amitriptyline (10mg/2 per day) but I still cough a great deal, especially in the mornings and after I eat a meal. I will definitely be trying ZARBEE's cough syrup as suggested by texanna in the previous post. I too have pulled muscles and made myself sick by coughing so hard. I'm tempted to increase the dosage on the Gabapetin if the doctor is willing. I always get the feeling that the doctors just wish you would go away. I'm seeing a PA in an ENT office and he is the first person I've seen that has taken an interest and listens to me.
It remains to be seen if he has any suggestions other than what I've heard for the past 11 years.
This condition changes your life. I'm afraid to go to movies, church, concerts as well as a host of other things. During COVID, people in stores would glare at me as I coughed my way up and down the aisles. I'm sure if I hadn't been wearing a mask, I would have been kicked out of the store.
Replies to "I've had this horrible problem since 2007 following a severe sinus infection. It took doctors 2..."
I have the same problem since 2007 after uri and stress time. After that everything cures but throat clearing and cough never went away. Every day every day every day. Been taking amitriptyline and gabapentin since 2016 it helped a lot but not 100%. I would say some time 80% some time 60% and some time 40% depending on how bad or good and how much i eat and stay away from anxiety and stress but its hard these days So many things triggers that stress and anxiety and way you eat and what you eat. Cutting alcohol is also helpful. When i have cold it feels more problematic.
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Hello. I feel your pain. Same thing here for over a decade, worsened during Covid. It’s definitely a quality of life issue. Am seeing an ENT next month who deals with larynx and will see where that goes, followed by allergist because I have bad allergies. Have you seen an allergist? Is it worth taking Gabapentin (side effects?) and Amitriptyline if they don’t really help? Or do they reduce your severe cough somewhat? I think there’s a lot more of us out there. Hoping medical community comes up with a solution.