Pulmonary Fibrosis*

Posted by tetreaulta5 @tetreaulta5, Feb 25, 2012

Is there any one out there that has PF?

Interested in more discussions like this? Go to the Lung Health Support Group.

can anyone tell me what and where does all the mucus that builds up in your lungs overnite comes from and is there any thing I can do to help releave the amount. THANKS FRANCKO

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@francko and @robinson, I moved your question about mucus building up overnight to the Pulmonary Fibrosis discussion group. Francko asks: where does all the mucus come from and what can be done to reduce or relieve it? I hope others have some thoughts about this.

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@colleenyoung

@francko and @robinson, I moved your question about mucus building up overnight to the Pulmonary Fibrosis discussion group. Francko asks: where does all the mucus come from and what can be done to reduce or relieve it? I hope others have some thoughts about this.

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@robinson For some of us (me) the mucus is an outcome of lung problems and over-supplied eosinophils. I have had this all my life. Anyway, most drug stores, big box especially, sell little bottles of mucus pills for $1 or less for about 10 or so little white pills. I buy mine at Walmart or Bi-Mart for 88 cents. Take one about every 12 hours or so.

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Do you know the name of the pills THANKS FRANCKO

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@francko Harry, The pills are simply called "Mucous Relief". They are "guaifenesin expectorant". The bottle is in a little box, about 2.5 inches tall and 1.25 inches square. 15 tablets. Just called "Pain Relief" It is their most effective simple pain relief. The shelf stocker usually puts both of them on the bottom or top shelf so they won't sell too many of them. There is also a little of pain relief, about the same size. Walgreens and many others stock them. It is the same story as about the insulin. You have to ask for the cheapest medicine they have.

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I have read in the group info about lung flare ups with pulmonary fibrosis. Being new at this can some one tell me what happens and do you end up in the hospital. Thank You FRANCKO

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@francko

I have read in the group info about lung flare ups with pulmonary fibrosis. Being new at this can some one tell me what happens and do you end up in the hospital. Thank You FRANCKO

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Hi Francko, I moved you message to the main discussion thread about pulmonary fibrosis, so everyone will see your question. Francko asks about lung flare ups, what are they? What happens during a flare up? And do you end up in the hospital?

Francko, have you or do you think you have experienced a flare up or are you preparing yourself for the possibility?

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I am new too the group and am the caregiver for my husband. He is 84 and was a farmer. Three yrs ago he was diagnosed with severe IPF and given the prognosis of 1-3 yrs. Last year he was hospitalized with bilateral pneumonia. He pulled through and is continnuing his battle. One of the mistifying experiences that he has often is dizziness. His doctors seem mistified with this problem.. I will be very interested to learn if anyone else suffers from he dizziness. My name is RoseMary

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@rosie82

I am new too the group and am the caregiver for my husband. He is 84 and was a farmer. Three yrs ago he was diagnosed with severe IPF and given the prognosis of 1-3 yrs. Last year he was hospitalized with bilateral pneumonia. He pulled through and is continnuing his battle. One of the mistifying experiences that he has often is dizziness. His doctors seem mistified with this problem.. I will be very interested to learn if anyone else suffers from he dizziness. My name is RoseMary

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While don't have IPF I do have GOLD Stage 3 severe COPD. I'm an automotive engineer so by no means a doctor not even close. I would however believe that the dizziness is due to low oxygen levels due to his condition. I would think this would be common towards the later stages, I get dizzy from time to time and if I oxmeter it usually says 70% or below. You can by these meters pretty cheap on Amazon . Not sure this helps at all but may be something to look at and an explanation.

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Thank you for your help. Bob's oxygen drops quickly with exertion of any kind but as soon as he sits down within 4 minutes or so it returns to normal

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