Hi Harry (@francko),
Welcome back to Connect. I moved your message to this existing discussion group where people are talking about plumonary fibrosis. Please meet a few of the members like @oliver22 @rayhastings @robinson @kturchin @penlee @alancady and @tula

Harry, we look forward to getting to know more about you. Have you recently been diagnosed with PF or have you been living with it for a while?

Harry I am new to this as well. I have had IPF for 15 months and have been taking OFEV. I just had a CT scan and it shows no advancement of the disease. I exercise regularly and am trying to reduce my weight as I am at 250 lbs. I am on oxygen when needed. The exercise is a key to maintaining as much endurance as you can. This includes weight training too. If I can answer any questions let me know and good luck.

I have been diagnosed with IPF earlier this year. My birth year is 1938, no oxygen yet and I stay pretty active. What did you want to talk about?

Hello Harry, I have had pulmonary fibrosis for about five years. At first with no symptoms I didn 't pay much attention to it. Then the breathlessness and cough and declining pulmonary function I woke up. I've been taking prednisone and Mycophenolate for three months and feel better, cough less. I also walk, practice yoga and do some fitness exercises. Is this helpful? What other questions do you have? Best wishes.

IN OCT 2016 I WENT INTO THE HOSP. FOR A BROKEN FEMUR WHEN THEY TOOK THE CT THEY SAID THEY SEEN SOMETHING ON MY LUNGS. THAT TURNED OUT TO BE A SMALL AMOUNT OF CANCER BUT THEY ALSO SAID I HAD ALOT OF SCARING THAT TURNED OUT TO BE PF I AM OLDER AND I HAD A VERY GOOD LIFE.MARRIED 60 YEARS TO MY HIGH SCHOOL SWEET HEART HAVE 3 GREAT CHILDREN 5 GRAND CHILDREN AND A GREAT GRANDCHILD COMING IN APR.THAT IS THE PART THAT BOTHERS ME THE WORST I JUST DONT WANT TO LEAVE THEM. SO THAT IS WHAT I NEEDED TO TALK TOO I KNOW WHAT THE OUTCOME IS BUT IM NOT SURE WHAT I HAVE TO LOOK FORWARD TO AND HOW LONG THANK YOU

I am having the same thoughts, I am only 71 but I am going to be alright either way. But my wife is not to keen on s lung transplant. She is afraid that it may even shorten my time here. My pulmonologist has my set to make an appointment for an evaluation for the surgery. She is not keen on that either. Like O said., I am OK.

@francko and @alancady, you both bring up a very important topic here that I would like to see as a new discussion in the Lung Health group. Living with a life-limiting disease can be very hard for family members to accept even when you've accepted and made peace with the reality of limited time.

Might I suggest that you start a new discussion? Here's how:
1. Go to the Lung Health group homepage here: https://connect.mayoclinic.org/group/lung-conditions/
2. Click the START A DISCUSSION button.
3. Enter a title. Something like "Living with Limited Time: Let's Talk about It."
4. Write your message. You can even repeat what you've written in this discussion.

I think this will be a welcome discussion on Connect.