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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@kturchin

I was diagnosed moderate last October at Mayo referred me to lung transplant center I’ve decided not to do that mentally I don’t think I can take the wait to see if I get an organ match on time and the wondering after if I’ll reject it I’m 54 I have had a hard life or I feel tired of fighting so I’ve decided against a transplant it’s been a year and a half since respiratory failure and the PF diagnosis with organizing pneumonia my lungs have gotten a bit more scarring and I feel crappy most of the time fighting lung infections I’m just living day by day to the fullest and looking into esbriet as a possible drug to try

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Replies to "I was diagnosed moderate last October at Mayo referred me to lung transplant center I’ve decided..."

I like your attitude of living day by day to the fullest. That's my intent also to make that choice of being there each day. Thank you for sharing some of your thoughts of your difficult decision about getting a lung transplant. I hope you can try the esbriet and it helps you feel better.

Thank you I wish you well also