Connect
← Return to Pulmonary Fibrosis*
Discussion
Comment receiving replies
I just received the results of my CT scan through my patient portal email. I haven’t seen my doctor yet who ordered the scan. I have had a terrible cough for years and take a lot of prescription meds for asthma. I had pulmonary embolisms in January 2015; and had a follow up scan in July 2015. At that time, my embolisms had been absorbed. There was no mention of scarring on the report from that scan. Of course, I am freaked out by what I have read on the medical web sites. My fibrosis was listed as “mild.” I was happy to find this group.
Replies to "I just received the results of my CT scan through my patient portal email. I haven’t..."
@browneyes60, Hello and Welcome to Mayo Clinic Connect! We are happy to have you here and glad you found us too!
In my opinion, I think that's the one drag to the patient portal- reading information and not having the ability to talk with your medical professional immediately. If you are going to continue to read on medical web sites- just make sure it's a reputable source. Otherwise this may be a good time to keep yourself busy and keep your mind busy at least until you can speak with your provider and get details about your scan. Normally what happens is the scan is done then the Radiologist reads the scan, writes a report and then it's released for review. Be content knowing that your provider will call you as soon as he or she reviews your scans and report. (I know waiting is the worst)
If you don't mind, keep us informed of what your provider says. We look forward to supporting and helping you along the way. Post any questions and or thoughts you have. The wonderful thing about this community is....what ever you post here turns around to a learning experience for other future members.
Connect
What a shock to get this diagnosis via a patient portal! I hope you will be seeing your doctor soon. There may be some treatment for you that may slow the progression or put you into remission. This group has been helpful to me as I Have not connected with anyone in my town with pulmonary fibrosis.