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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: 5 days ago | Replies (140)

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@jeffrapp

Hi Rachel
Thanks for the link. I will listen to the whole thing later. I believe I have seen his earlier video.
I have participated in mindfulness courses, and practice it as well (although not as well as I should). I use Curable, and I am an advocate for mindfulness practice.
However, I'd like to point out that in the case of typical Small Fiber Peripheral Neuropathy, there is an actual physical injury (tissue damage), which can be demonstrated by a punch biopsy. Similarly in other forms of PN.
This is somewhat different from other forms of chronic pain syndromes.
Not to discourage anyone from trying this form of therapy. In many cases, it is the only thing that works.

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Replies to "Hi Rachel Thanks for the link. I will listen to the whole thing later. I believe..."

Hi @jeffrapp, it's nice to hear from you again. You and I have chatted in the past about Curable and the practice of mindfulness. I think the Curable App is a great, useful tool, and I love that you advocate for it's use on Connect to help others. Thank you!

I appreciate you making the point about tissue damage and neuropathies. I also was diagnosed with SFN via a skin punch biopsy. Whew, it all gets too confusing sometimes 😜. To correct myself, what I learned at Mayo Clinic from Dr. Sletten regarding the upregulation of the central nervous system and peripheral input resulting in increased sensitization and chronic symptoms (Central Sensitization Syndrome), was that both acute and chronic conditions CAN have tissue damage. Here is the difference from a CSS perspective:

ACUTE - ------> CHRONIC -
Sudden onset/ Variable onset
Short-lived / Long - lasting
Tissue damage / Tissue damage
Equal symptoms / Unequal symptoms
Treatments work / Treatments +/-

I am not a doctor, so it's probably best explained by Dr. Sletten in his CSS video:

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

It's so important that each person reviews pain-management programs, tools, apps, books, and other options to identify what may be best designed for their success. Learning and understanding as much as possible about their disease, syndrome, or damage is always best before navigating therapies or programs. As many of us find out, including me, is that trial and error typically occur. We try and try again.

Regardless of why we have chronic symptoms, the blue print is pretty much the same when seeking a better quality of life... acceptance, moderation, modification, mindfulness, emotional and behavioral strategies, distraction, healthy diet and exercise, finding joy, gratitude, and humor. It's a full tool box! Mayo PRC offers a comprehensive approach to all of this and more which is why it was the best fit for me.