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DiscussionAllodynia: Anyone else sensitive to touch?
Neuropathy | Last Active: Aug 30 5:28am | Replies (148)Comment receiving replies
Replies to "Hi Rachel Thanks for the link. I will listen to the whole thing later. I believe..."
Hi @jeffrapp, it's nice to hear from you again. You and I have chatted in the past about Curable and the practice of mindfulness. I think the Curable App is a great, useful tool, and I love that you advocate for it's use on Connect to help others. Thank you!
I appreciate you making the point about tissue damage and neuropathies. I also was diagnosed with SFN via a skin punch biopsy. Whew, it all gets too confusing sometimes 😜. To correct myself, what I learned at Mayo Clinic from Dr. Sletten regarding the upregulation of the central nervous system and peripheral input resulting in increased sensitization and chronic symptoms (Central Sensitization Syndrome), was that both acute and chronic conditions CAN have tissue damage. Here is the difference from a CSS perspective:
ACUTE - ------> CHRONIC -
Sudden onset/ Variable onset
Short-lived / Long - lasting
Tissue damage / Tissue damage
Equal symptoms / Unequal symptoms
Treatments work / Treatments +/-
I am not a doctor, so it's probably best explained by Dr. Sletten in his CSS video:
- https://www.youtube.com/watch?v=vJNhdnSK3WQ
It's so important that each person reviews pain-management programs, tools, apps, books, and other options to identify what may be best designed for their success. Learning and understanding as much as possible about their disease, syndrome, or damage is always best before navigating therapies or programs. As many of us find out, including me, is that trial and error typically occur. We try and try again.
Regardless of why we have chronic symptoms, the blue print is pretty much the same when seeking a better quality of life... acceptance, moderation, modification, mindfulness, emotional and behavioral strategies, distraction, healthy diet and exercise, finding joy, gratitude, and humor. It's a full tool box! Mayo PRC offers a comprehensive approach to all of this and more which is why it was the best fit for me.