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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@lisalucier

Hi, @1jonwilcox. Thanks for posting here and telling us a bit about your background. Welcome to Mayo Clinic Connect.

As you can see, I've moved your post over to this existing discussion of pulmonary fibrosis since you mentioned this diagnosis, hoping some of the members here might have some insight on what you've shared. I'm sorry to also hear you've had COPD and some hearing loss.

Exciting to hear you've surpassed your life expectancy!

What symptoms would you say are bothering you the most recently?

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Replies to "Hi, @1jonwilcox. Thanks for posting here and telling us a bit about your background. Welcome to..."

I take my Symbicort inhalation as deeply as I can and hold my breath as long as I can (up to 60 seconds), one puff each night. I also have a dripping left sinus since a minor stroke. I use NeilMed Sinus Flo rinse every night before bed and I do "Airlife" inhalation exercises 10 times before bed as well as using a humidified c-pap machine every night. My lung MD offered to put me on oxygen, but I felt that would be a crutch and an impediment, so I declined and I am glad I did!. I still huff and puff after any strenuous exercise and can no longer run, but at almost 76 I don't feel the need to run.