← Return to Paget's disease of the bone and other inflammatory issues

Discussion

Paget's disease of the bone and other inflammatory issues

Cancer | Last Active: May 6, 2023 | Replies (22)
Comment receiving replies
@nottoday

A few months ago I had a high CCP with sore joints. I was told that because the sed rate wasnt high and the RA factor was not present that I didnt have RA.
Now months later I have extreme joint pain and swelling. I went to the ed for torodol and steroids and they did a CT because of dry cough ( I thought it was allergies)
I was told I have mediastinal adenopathy. I was sent to an oncology navigator and I am waiting for a biopsy.

I now have high d-dimer and CRP. And the sed rate went up from <10 to 20. My ankles are so sore I cannot walk and swollen I cannot put my shoes on. Elbows and wrist are not as bad but I feel it.

Has anyone had this experience? I wonder if my adenopathy was initiated by undiagnosed RA or if the inflamed joints are secondary to the adenopathy.

Jump to this post

Replies to "A few months ago I had a high CCP with sore joints. I was told that..."
John, Volunteer Mentor | @johnbishop | May 27, 2022

Hi @nottoday, I've had 2 occurrences of polymyalgia rheumatica which also has some of the symptoms like inflamed joints and associated pain but it sounds like you might have a lot more going on. According to this article I found, RA can be one of the underlying causes of adenopathy --- What Causes Adenopathy and How Is It Treated?: https://www.healthline.com/health/adenopathy

Are you able to ask your doctor about the possibility of RA or other condition as a cause of your adenopathy?

VIEW AND REPLY
aleciarickabaugh | @aleciarickabaugh | May 28, 2022

I have some similar issues. I have all the symptoms of RA but all my tests were normal until i received a positive paraneoplastic autoimmune antibody but it's dismissed because it's link to cancer is questionable. But i also had a very high ANA and finally after 2 yrs of swollen hands my sed rate was momentarily elevated but only a 37. I can barely use my hands anymore and some days i feel like I got hit by a truck. I recently started to develop some lung nodules which i feel is leading to a sarcoid diagnosis since several family members had it. sarcoidosis can cause those kinds of symptoms if its skeletal sarcoid.

VIEW AND REPLY