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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@alancady

I have Pulmonary Fibrosis from chemicals. Is this just for IPF or can I with PF join in? Alan

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Replies to "I have Pulmonary Fibrosis from chemicals. Is this just for IPF or can I with PF..."

Welcome, @alancady. You can certainly join the conversation. As you probably know, "idopathic" only means that the cause of PF is not known. You say that in your case the cause is known, namely from chemicals. What exposure do they believe led to your developing pulmonary fibrosis?

3 years in Vietnam and flying a lot of the time. BUT I spent more time on the ground that in the air. I love ed the flying but I also liked to run when I could. I was running on the periphery and that is where. they did a lot of truck 'spraying' and the dioxin (Agent Orange) was in everything we drank, showered, slept, ran, breathed all the time on the ground. AND some of the lovely stuff always got to sneak into our planes. I also had cataracts removed in both my eyes before I was 35. I have just started to have my fingers shake when I am eating and getting more frequent headaches, I am a bit shaky and the walker I have helps as well as the 24 hour Oxygen, and I have lost about 80 Lbs in the past 4 months. UNTIL I found out I had P F I did not mind the weight loss. I was looking a bit too skinny. BUT now I will be easier to move around by everyone that will help me at home. May they find lung for all of us that want them and a comfortable life to the end for those that do not want a transplant. God bless all and the Mayo Clinic.

Thank you for your service sir, and I know the goog Lord will take care of us who have I P F.

God will be with us in this fight also. I too want thank everyone who served and that all of the caregivers will have all of the strength they will ever need.