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← Return to Pulmonary Fibrosis*
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Greetings! I am new to this site and I do have pulmonary fibrosis a more specific diagnosis maybe nonspecific interstitial pneumonia. Most other ILD have been ruled out. About five years ago I was told I had some lung fibrosis but it was not until this past March, 2017, that I began to pay attention & understand the specifics. Coughing and shortness of breath are my main symptoms. Recently I began taking Mycophenalate (CellCept) and a small amount of Prednisone. So far l'm doing okay and feel well though the cough continues. Has anyone had experience with forest fires and heavy smoke in the air? I live in Oregon where we have been surrounded by wild fires. At times I wore a 3M N95 mask. Thankfully we had some rain today!
Replies to "Greetings! I am new to this site and I do have pulmonary fibrosis a more specific..."
You sure had some terrible reactions to those meds! I'm glad to hear you get out and walk. Slow is okay. Me too. Last winter I experiences bitter dry cold in the mountains. Coughing was continual.
Hi penlee. Have been directed to you as I think we share the same diagnosis which is a pretty rare condition. How are you doing now? I hope you see my post too. I’m on the same medication as you too, although I just started on Cellcept a month ago. But don’t feel my condition is getting any better... doing my daily routine ie. showers and walks and brushing teeth is getting harder. 🙁
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I can't take really bitter cold air below zero in Minnesota at times and really hot humid weather I have trouble breathing pretty bad need to wear oxygen pac on 4 and 5 pulse other I dip in the 70s at my worst this past winter I most definitely would wear a mask outside I tried cellcept made my kidneys drop to 50 percent working in 3 weeks won't take it again before may 2016 I never had any lung issues kidney heart liver etc so I refuse to take a med that damages and has that affect on another organ also tried imuran per the Mayo Clinic that made me violently ill throwing up couldn't keep very little liquid and no food finally went to the er gave me shots to stop throwing and pills for home 3 bags of fluids later stopped meds refuse that one again too I'm taking the natural wait and see approach I've been healthy my whole life I've got a little more fibrosis this past year and I'm able to walk very short distance no oxygen walking slow that's all I can do with my lungs the mayo graded me as moderate pic with organizing pneumonia