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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@kturchin

No meds now my dr had put me on cellcept which was shutting down my kidneys within 3 weeks and imuran which made me violently ill throwing up and diarrhea for 6 days so bad I got dehydrated and went to the emergency room for meds to stop throwing up and 3 bags of fluids my doc this past week tried to get me to try them again I refused they both MAYBE will stop progression of fibrosis for a maybe in not willing to take either strong drug with huge side effects I've read a lot about esbret on this thread if I happen to get worse I will ask about this drug although I read also with insurance it's 3000 a month

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Replies to "No meds now my dr had put me on cellcept which was shutting down my kidneys..."

I have ILD and have been on Cellcept for more than two years with no side effects. My pulmonologist has been reducing my dosage and I am now taking 500 mg a.m. and p.m. Maybe you should give the drug a second chance?