@nanmargaret,
I just returned home from Mayo in Rochester for my annual checkup. So I'm a bit late in responding. I hope that you will soon get relief from your side effects, and begin to return to a more active lifestyle that you had previously enjoyed.
I am a liver and kidney recipient, and my own experience does not include the questions that you have presented. And so, I'm sharing a link to a discussion that might giver you a place that might reach a bigger audience of heart transplant members. Please don't be deceived by the title because these patients are sharing their 'post transplant experiences. I invite you to take a look, read, and to ask your question about antibody-mediated rejection and Belatacept

Transplants > Preparing for a heart transplant
https://connect.mayoclinic.org/discussion/preparing-for-a-heart-transplant/
@nanmargaret, When will you be in contact with your doctor again? And when will he make the decision about the medication change?