← Return to New long COVID symptoms? Have you encountered new ones?

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@welchllb

Have you read The Invisible Kingdom, Reimaging Chronic Illness by Meghan O'Rourke? It's worth reading. Even though her focus is primarily about her long undiagnosed illness, Lyme Disease, she addresses Long Covid and the frustration of people seeking solutions. If nothing else, I love the fact that a well-known journalist has written about the need for a "seismic shift in our approach to disease". I hope the medical community takes note.

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Replies to "Have you read The Invisible Kingdom, Reimaging Chronic Illness by Meghan O'Rourke? It's worth reading. Even..."

Thanks for the reference! Yes, the medical community must be a step ahead of even Ms, O'Rourke. I was hoping that previous research would give them a start or insight into long covid, but I think each person has had to start from the beginning in terms of ruing out what it isn't, and then there is no straight path to help given right now they can't attribute it to autoimmune, inflammation caused by the initial infection, or a persistent infection related to the virus. Again, I'd like to know how the clinics are interacting and sharing information to that end. The frustration I see is in getting people to the best possible place as quick as possible, including a primary doctor considering other options and referring more quickly than what is done now.