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Newbie MAC caregiver with questions
MAC & Bronchiectasis | Last Active: Jul 23 8:34am | Replies (29)Comment receiving replies
Melissa,
Great update on your husband. I moved your post with your update to this discussion where you were sharing about his sitution:
- Newbie MAC caregiver with questions https://connect.mayoclinic.org/discussion/newbie-caregiver-with-questions/
I did this because I wanted to be sure that @egayle187 @crepass @cmi @sueinmn @coco1970 @becleartoday @raney @rits @gej53 @migizii @cayenne @thumperguy and others who shared their tips and support saw your update and the high praise you have the knowledgeable and compassionate members of this forum.
You ask about Amikacin liquid inhalation. Here are a few related discussions that you'll find equally useful:
- Inhaled Amikacin: What works for me by @katemn https://connect.mayoclinic.org/discussion/inhaled-amikacin/
- Any good results from taking Amikacin?? and what were side effects? https://connect.mayoclinic.org/discussion/any-good-results-from-taking-amikacin-and-what-were-side-effects/
How is it going with the PICC line?
Replies to "Melissa, Great update on your husband. I moved your post with your update to this discussion..."
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Thanks Colleen. I am glad you made the switch to the appropriate audience for my comments.
The information on inhaled Amikacin is very helpful and appreciated.
As for the PICC line, Bruce only had it for a month. Amikacin infusions had a detrimental impact, causing hearing loss and ringing in his ears. He was quickly switched to the Arikayce nebulizer and his hearing was restored. He still has ringing in his ears but it's less than it was.
Now, after 5 months of Arikayce neb use, his ID Pulmonologist is moving him to inhaled Amikacin (no liposome suspension) in an effort to resolve serious shortness of breath issues. Jury's out.