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Antibody-mediated rejection and Belatacept

Transplants | Last Active: May 26, 2022 | Replies (25)

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@nanmargaret

Thank you @banksnc49 and
@ladydidehart and @hello1234
There are much fewer heart transplant patients who have used Belatacept, so I didn't know anyone else with experience. It's good to hear that it's been well tolerated by you--keeping my fingers crossed.
I take Myfortic, which is the enteric coated version of Mycophenolate. I was switched to that early on because of reflux and GI issues, which it's known to cause in some people. The coated version helps but I've still had some reflux, most likely from a valve issue and take either Protonix or another acid reducer.

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Replies to "Thank you @banksnc49 and @ladydidehart and @hello1234 There are much fewer heart transplant patients who have..."

Hi @nanmargaret 😊 Thank you so much for mentioning acid reflux and GI issues. I take Mycophenolate. (I never knew that Myfortic is a coated version of Mycophenolate!)
I would like to take Protonix but I am concerned about adding to my already elevated liver enzymes.
I take my Tacronlimis and Mycophenolate with food in hope of helping my stomach, but it doesn't seem to be working. Do you take your medications on an empty stomach or with food?

I guess I missed that you had a heart transplant. I had a kidney transplant. I don’t know if that makes a difference. Best wishes on your journey.