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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@steve1948

I would so love to run again, I used to run 6 miles a day 6 days a week, just climbing one flight of stairs winds me so very much. I meditate on occasions however I haven't got to the level of taking deep breaths yet (when I do I begin to cough). thanks for the input, I'll continue to work on it.

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Replies to "I would so love to run again, I used to run 6 miles a day 6..."

Great work at attempting stairs! You are amazing.
My Asthma/Allergy Doctor and I just had a conversation about climbing stairs. (I love the challenge) He said, Stairs are the toughest exercise! A team of doctors climb four flights together and they are all panting!
Oh, I also cough when I do stairs; and after a race I cough for a few days. I look
at exercise as my "lung cleans". Ha!
But, please check with your doctor!
I admire your lung fortitude. Keep up the great attitude. You inspire me.
Linda

Were you around Danang Vietnam? I was a runner and ran around both inside the fence and outside for a change. I also ran in Japan where I was stationed at Atsugi as well as around a golf course near our church. I quite often got badly beat by another sailor and he was stationed on a ship. He just ran wherever he could. He was one fantastic runner. One thing I noticed was the longer I was running in Vietnam the slower I ran. I did not think a lot on this in 66 to 68 but there was a lot of A.O. sprayed on the perimeter of the base. NOW I understand and I have the chemical Agent Orange to make it tough luck for me. I cannot longer walk fast outside in hot weather it is even worse.
I only found out after I had my medical records sent to me in early June. I had nearly 1700 pages to read. I found out about other things before 2014 but at 2014 to 201`7 I really found out a lot. The VA found the fibrosis in my lungs but never told me or offered many treatment. Including the new drugs that came out around 2013? They just took biopsies on different parts of my lungs to find out I had some benign spots on my lungs. 3 Biopsies to be correct and THEY also wanted to do another partial open
chest biopsy which I did not accept. NOW what do I do? I had 3 years of this stuff working on my lungs and no on gave me any advice from the OKC VA. I am now seeing a private Pulmonologist and he just. was able to start me on one of the drugs. BUT he doesn't think now that I am past 71 years I will not get a lung transplant again THANKS VA.
I was told by someone at the Mayo Clinic in Minnasota that they would take cases and look at them on their own findings. That is better than what I was expecting. I'm done. Good healing and breathing to all of us.