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Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)

Stroke & Cerebrovascular Diseases | Last Active: Oct 16 11:56am | Replies (91)
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@sonya_nc

My 30 yr old daughter was diagnosed with CVST in April. The suspected contributor was estrogen birth control pills- no clotting disorder family history and neg on genetic tests. She has been discharged and recovering at home.

It has been a difficult time to say the least- any patient or caregiver out there I can connect with? Thank you- Sonya

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Replies to "My 30 yr old daughter was diagnosed with CVST in April. The suspected contributor was estrogen..."
Amanda Roe | @amandajro | May 27, 2022

Hello @sonya_nc. I am so sorry to hear of your daughter's diagnosis and can understand this being a difficult time for you both.

I was able to find an existing discussion on the topic of CVST so you will notice that I have moved your post here: https://connect.mayoclinic.org/discussion/cerebral-venous-sinus-thrombosis-cvst/?pg=6#chv4-comment-stream-header

I would like to bring in members such as @mvoss8626 @kiwimn17 @makingfriends @moondusk and @awalker88 to see if they may be able to provide you with some much needed support.

In the meantime, can you share how she has been doing and what some of the major concerns are that you hope to get support for in this community?

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