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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@linda2114

How exactly did you get diagnosed? I have had multiple blood tests and diagnostics scans by my local hospital and oncologist because I developed cancer.

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Replies to "How exactly did you get diagnosed? I have had multiple blood tests and diagnostics scans by..."

My ESR and pain in my head and temple. They did a biopsy on both temple arteries that were negative. Prednisone took away pain
40 ml. And a trip to Mayo verified GCA. Nothing else. Just prior I had PMR.

Linda. You can diagnose cancer. Great now you do something about it. With my autoimmune crap nothing was diagnosed. It was yes mono because I had severe liver involvement. But the rest of it was guesswork. Chronic fatigue now Epstein Barr didn’t have a name until I was sick with it for 10 years. All these illnesses left me with no adrenals so I stay on prednisone and serious muscle weakness and pain. I use a walker because I fell and broke my femur. It was a non union so I never healed. I fight every day of my life to get out and check out my garden. Even though I can’t do it myself (really hate that part). I am really good at keeping thing alive and beautiful. So you can’t stop…..ever. Find the small pleasures and watch them grow. I write this with braces on my wrists due to arthritis. ❤️😃