Thank you for your reply. It's the first and only positive thing I've heard since my diagnosis. It gives me hope which is what I'm searching for right now. I've gone through the shock and denial phase and now acceptance. My daughters are still in shock and panic and I haven't had a chance to talk to my son as he's been away on his honeymoon for the past two weeks returning tomorrow. What an awful thing to come home to.

PF is a tough dx.i was dx over 5 years ago. Although there is currently no cure, there a lot of research and tests of drugs that show promise. You need to see a pulmary specialists, one that is familiar with IPF. This condition is beyond the normal MD. One of the things that helps me is excerse. Hopefully there will be help for us in the next few years.

Hi Oliver I have just received all my results I have IPF early stages my lung tests at 89%, have bilateral scarring, some levels in my blood are indicating lupus. This is in my family's genes. I have some symptoms cough, winded after light exercise, I was just put on predizone 60mg a day. I have a future appointment at mayo jack later next month. I have been looking at the drugs and I have a ton of questions. I am 60 175lbs 5'10" how has the esbriet for side effects. I'm reading vomiting diarrhea sensitivity to sun. How has it been for you. Arty

I've been on Esbriet going on my third year, on one or two occasions I did have some sun sensitivity (while golfing) but wearing a hat cured that. My biggest problem is the acid indigestion (or heart burn) I get from taking it (9 capsules a day). You should eat before taking it, but for me the one and only sure thing I can do to alleviate that side effect is a shake with a banana in it. Whether it be a half or whole banana. I mix it with milk and my protein powder. Other than that I haven't had any of the other side effects. it is a very expensive medication, because of it being fairly new still. Have to wait for the patent protection runs its course before the price will come down.

hi Arty, I read they started you @ 60mg Prednisone I never had more than 40mg. along with Imuran (sp)plus 2 litre 02 to sleep. two yrs later Esbriet 9x3 now 6x2 reduced to adjust for sensitivity to Sun I had zero nausea or diareha.med for acid reflux for sure!lots of O2 for me 5ltrs full flow on the Oxygenerator.nothing but Esbriet for 2.5 yes very pleased with results ,little coughing,little mucous, lots of sleep. oliver 22 this thing is liveable with lifestyle changes including difficulty flying!.Sent from AOL Mobile Mail