Struggling with making an osteoporosis treatment decision

Any bone building program whether medical or physical takes two years to rebuild bone significantly. See if you can find a clinic that uses Echolight sonogram bone density which measures bone strength as well as bone density. (I found one in Asheville NC)
Better Bones with Dr Susan Brown offers a list of tests to request from your doctor to determine why you are losing bone. My endocrinologist discovered I had a kidney condition that was spilling calcium and a simple medication is treating that. I requested physical therapy sessions and now have an exercise program designed to build bone. Hope these ideas help. To motivate me I have a card by my bed that says “Forteo injections every night or do your exercises?”

Any bone building program whether medical or physical takes two years to rebuild bone significantly. See if you can find a clinic that uses Echolight sonogram bone density which measures bone strength as well as bone density. (I found one in Asheville NC)
Better Bones with Dr Susan Brown offers a list of tests to request from your doctor to determine why you are losing bone. My endocrinologist discovered I had a kidney condition that was spilling calcium and a simple medication is treating that. I requested physical therapy sessions and now have an exercise program designed to build bone. Hope these ideas help. To motivate me I have a card by my bed that says “Forteo injections every night or do your exercises?”

While I'm at it, as I live in Asheville half the year and know zero doctors there, can I ask who your endocrinologist is? I've so far been taking care of health stuff through the south Florida Cleveland Clinic but that's not a great long-term plan.

Echolight:
StrengthX LLC
1340C Patton Ave
Asheville, NC 28806
828-505-7200

I started Evenity in June 2021 and have just completed the course and had a bone density test. Evenity really helped. I had undiagnosed celiac disease with no symptoms that was only discovered when I was 61 years old. This is a reason why I had severe osteoporosis. For 20 years I was taking Actonel, Fosomax and finally Prolia with only a slight improvement in my hips; none in my spine. My one Prolia injection had an unusual side effect, a messed up sense of taste, so I never took it again. Finally my primary provider sent me to a Enterologist. I was put on Evenity after getting the OK from my dentist to assure I had no dental problems. I wasn't aware of other side effects. I have now gone from severe osteoporosis to a slight reading just above osteopenia, so the treatment was a great success. I'm delighted; my only possible side effect to date was a rash after my eighth treatment (I have a mild sulfa allergy). I was the first patient in the practice to finish the year-long course. It was expensive ($420 co-pay per month), but I took a hard fall a few weeks ago and had a really banged-up swollen and bloody knee and a swollen, bruised ankle, so no broken bones was worth the cost.

Would you be kind enough to post your before and after t-scores? I just finished 1 year of Evenity and I am waiting for my DEXA scan to see how much it has helped. Congrats on no broken bones!!

When I had my first bone density in 2000, my spine was -3.6 and my hips -3.5 Over the past 23 years with fosomaxx and actonel, my hip scores improved some, down to -3.0. My spine never improved, but didn't get worse. My new density test this month showed a major improvement in my spine -2.7 and my hips -2.6. That's still osteoporosis, but so much better. From what I've been reading, improvement seems to be really good in the spine. Yale is my local hospital, so the doctors available to my family have been great and I don't question their treatments. As I noted, my only possible side effect was a minor rash that I think was due to my mild allergy to sulfa.