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Dismissing doctors: How do you find a doctor who can help?
I have had chronic pain since 10 plus years, I’m 34 now a mother to a 4 year old and life is getting harder day by day
Ana titer positive
D dimer high
All autoimmune panels negative
No other signs of inflammation
But when doctors examine they can feel the muscles are stiff, contracted, rigid.
They think it’s fibromyalgia but nothing has helped me. Since the past 6 years I’ve been on different medicine, therapies everything.
Every other month a new symptom appears and now I don’t know what to do.
Left thigh is the oldest problem, I have sore rigid muscles and I don’t even know what relaxed muscles feel like.
Some doctors think it’s some autoimmune but are unsure.
My new symptoms in the last 2 months
Extreme anxiety/over eating a lot due to anxiety
Insomnia very recent cannot sleep at all
Contracted muscles/ rigid muscles all the time unintentionally I try to realease as soon as I realize they are contracted
Forgetfulness - forgotten a lot of important times of my school/college life
Brain fog
Sleep talking very recent
Pain in my left knee
As soon as I wake up an put my feet on the ground they feel extremely sore.
My neck is tilted to the left side all the time because of extreme pain
In the past I have had high crp
But not anymore.
Can someone please help me.
I can’t function most days
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I am just discovering that myself that there are alternatives for pain that doesn’t require pills. I am receiving my first Cervical Medial Branch Block and if it is successful I will receive injections that will help me with pain for several months at a time without pain meds which work but are addictive and have bad side effects. I am hopeful.
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1 ReactionI am so hopeful for you!!!! You’ve definitely taken the right road to relief!!!!! Remember some things work well ….some don’t….some things work for a while then you may have to try something else!!! At least you’re at the right place and not filling your body with pills!!!!
Good Luck!!!!
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2 Reactions@butterflywings I get a lot of benefit from myofascial release. You may be interested in our discussion on MFR. The beginning pages have lots of links to information.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Hi, for unexplained pain you might try and find a Bowen Therapist. It's not main stream medicine but it has helped me a lot. Similar to myo-facia massage but different. I highly recommend it. Make sure you find a good one. They are hard to find.. good or bad.
Thank you very much for that suggestion. I have just this week found a therapist certified in MFR! It is a terrible reflection on our healthcare system when the patient has to do their own research. Thanks to everyone here and AmericanBoneHealth I am finally getting valuable information.
I am looking at the information re Bowen Massage, do you have a link to any information? Thanks!
I cannot send you the link I have found even though I tried to photograph it and send it … but I do believe I have the right info now. Thank you!
This should tell you what you need to know about it and also how to find a practioner
Thanks!
I'm fine with a neurologist referring me gastroenterologist for that area. I am NOT fine with doctors now using it as an excuse. They can't solve it, so they don't believe you. So they send you to someone else. If, as I have done, you have seen all these specialists, and you still get sent somewhere else. Or as the neurologist did, I didn't have Parkinson's Disease, which I am eternally grateful for, so they were done with me. It takes a patient's time and money to run around and see other doctors in specialties you have already seen. Or, back to one for something that was already diagnosed. If I lived close to Mayo Clinic, I would definitely go to their Fibromyalgia center. There is no cure, and some things just don't work. The battle against Fibromyalgia is on going and most of it is up to the patient. Find things that work.And do them.