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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@colleenyoung

@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo Clinic http://mayocl.in/2jAEmAi I'm glad you found Connect to ask questions of people who are living well with IPF. What's your biggest concern?

@loisblo, what is your exercise of choice?

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Replies to "@agullotti, getting a new diagnosis like IPF can be a shock. Here's more information from Mayo..."

I have been very active working a lot 60 hours on average played hockey when I was younger. Still love to scuba dive with my wife. I guess that's all going to change.

I went to pulmonary rehab at a local hospital. I have an exercise program for my situation. My doctor just stressed how exercise is what will keep me strong. I will be 80 years old in a couple months and am still active although I had to give up golf. Good luck with the scuba diving. What fun!

@loisblo why did you have to give up golf? What activities keep you busy now?

I mainly walk but that is getting more and more difficult. I am having a bad time now not able to breath even with o2 especially at night. I am having to use O2 more during the day also. These "attacks" seem to be weathered related as it is cold and raining now. Does anyone else have trouble when it rains?

cold weather, high heat, and humidity I have found decreases my breathing capabilities. This is the first year I have gone to Florida for the winter (Live in Michigan) to get away from the cold with my condition. To start off, at least I can walk outside without a mask and not immediately begin my coughing spasms (something I did at home even with wearing pulmonary weather masks). The warm weather here doesn't cause the "particular" problem with me. When the humidity climbs and begins to rain it challenges me a little more. I don't know if the atmospheric pressure has any bearing on my breathing and coughing. I suppose I could begin a journal to find out, but never the less, it is what it is for me. I feel for you and wish you the best of luck.

You should try Arizona instead of Florida...warm, dry<br>