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I found out that I have PF about 2months ago. Had alot of test and blood work . The Dr. I have wants me on oxygen 24hrs a day but I have been fighting that. Now it looks like I will be giving in to the use of oxygen. Don't like the idea of there not being a cure other than lung transplant. I try to stay active by golfing softball and yard work, but sometimes its a alot of work where it didn't used to be that way. I will not sit home and be a veggie. I am 66 yrs old.Don't have a mayo clinic near me.
Replies to "I found out that I have PF about 2months ago. Had alot of test and blood..."
Just contacted Mayo Clinic near me. I was informed that their cut off age for a lung transplant is 70 years old. This is a general rule and I was told that doctors would evaluate my health condition overall and could make an exception. I live in Florida and Florida Hospital has no age cut off. If they believe that you can survive the surgery and recovery your chances of a transplant increases. I have been told that there are some fairly strenuous tests you must pass in the gym as a starter.
Good luck to you
Hi from JackC , I have been on oxygen for only a few weeks but without it my saturation levels range from 77 to 85. Struggling to breath. I to am on it 24/7 but it sure beats the alternative. I don't qualify for a lung transplant since I have severe Ankylosing Spondylitis and am totally fused. Best hope is to enjoy what life I have left, that's my reality.
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I have hypersensitivity pneumonitis with fibrosis. I have been improving thru exercise and medication. Is there anyone who has gotten off oxygen after improving?