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Pain control with Lewy body dementia

Brain & Nervous System | Last Active: May 30, 2022 | Replies (3)

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@amandajro

Hello @anthonyvw1940 and welcome to Mayo Clinic Connect. I'm so sorry about your LO. I was able to find some information that may be helpful below.

"If possible, avoid medications with anticholinergic properties, which can worsen cognition, or dopamine agonists, which can cause hallucinations. First-generation antipsychotic medications, such as haloperidol (Haldol), should not be used to treat Lewy body dementia."
- Medications - Lewy Body Dementia Resource Center: https://lewybodyresourcecenter.org/what-is-lbd/treatment-important-information/medications/

- LBD Video Series: Todd Graham, LBDA: https://connect.mayoclinic.org/blog/dementia-hub/newsfeed-post/lewy-body-dementia-a-video-series-todd-graham/

Can I ask what you've been giving your LO to help with the pain and/or what was initially recommended by your neurologist?

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Replies to "Hello @anthonyvw1940 and welcome to Mayo Clinic Connect. I'm so sorry about your LO. I was..."

We are being challenged getting the treatment we need and getting an MRI done. He continues to live with a great deal of pain. We are currently rotating extra strength Tylenol, 650 Mg Tylenol and Aleve. We started him on Tramadol once a day yesterday.