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My husband 61, was diagnosed with IPF in November of 2011, he is deteriorating very quickly, a set of lungs is his only hope. We have been turned down my Tampa General and Jackson Miami Hospital. He has to be an "otherwise Healthy being" the first dr we had did nothing, and now I find the issues he has are related to the IPF and disqualify him for lungs. I am desperate, I want him to live.....on and off of steroids and xanax, spent a week in hospital three weeks ago for respiratory failure. Anything anyone knows of to help, please send me info....
Replies to "My husband 61, was diagnosed with IPF in November of 2011, he is deteriorating very quickly,..."
I have IPF as well from Ankylosing Spondylitis. It's attacked my entire body with spinal fusion from C2 to T3 and L1 to S1. My thoracic is fused ( bamboo) so basically entire spine fused. Now my rib cage and lungs are being attacked. On oxygen because saturation level is always 82 to 85 when I do any physical activity. This only started about 3 months ago. Any suggestions are welcome
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I am so sorry you two are going through this!! We are just in the beginning and the future does not look so great. What can I say, except that I too care for you.