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I've had CML for 20 years and want to encourage others

Blood Cancers & Disorders | Last Active: Mar 29 1:41pm | Replies (23)
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@babyjakejake

Hi @suzie71

If you are still here, I would love to connect. I was diagnosed during June 2022.

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Replies to "Hi @suzie71 If you are still here, I would love to connect. I was diagnosed during..."
Colleen Young, Connect Director | @colleenyoung | May 30, 2022

Hi Jake, welcome to the CML discussion group. You may also be interested in this related discussion where you'll meet fellow CML-ers like @living @anglis @craighatescancer as well as @suzie71
- Chronic Myeloid Leukemia (CML) https://connect.mayoclinic.org/discussion/chronic-myeloid-leukemia-1/

Jake, in the meantime, can you tell us a bit more about you? I assume that you diagnosis date was a typo since it's not quite yet June 2022 😉 When were you diagnosed? What treatment(s) have you had? How are you doing today?

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suzie71 | @suzie71 | Mar 27, 2023

I just saw this reply. Sorry I have not followed up. I am now 5 years treatment free remission (TFR), and please share what TKI you are on Etc.

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suzie71 | @suzie71 | Jul 29, 2023

I just saw this message after all this time, and have been dealing with a lot of issues other than CML. I go next week for my blood test, and if I am still and I pray that I am still undetected it will be 5 years of no treatment I am TFR Treatment Free Remission. This Feb will be 6 years total with no treatment as long as I remain undetected. CML is very treatable, even if people have a trace still showing in the blood work.

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