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Daily random shocks throughout body
Chronic Pain | Last Active: Oct 30 9:20am | Replies (48)Comment receiving replies
Hi. I'm Tiffany. I also have suffered the full body shocks for many years. I'm 37. I have a rare terminal auto immune diseases called Scleroderma and a ton of sub diseases that go hand in hand. My drs all think im crazy too when I mention it. For me the shock is like a lightning strike and it starts in my brain and goes down to my toes. But literally goes top to bottom every time. It's so painful. It happens every single day and usually only when I'm resting. If I take an afternoon nap it happens. My neurologist thought I was delusional. I still don't know what causes it... but it would be awesome to have a name or word for what this thing is... and I'd love a way to get it to stop. But scleroderma has NO CURE so I'm probably never going to know. But your kids are NOT alone! Keep yalls heads up.
Replies to "Hi. I'm Tiffany. I also have suffered the full body shocks for many years. I'm 37...."
Hi also, Tiffany. Just checking a few posts before I go to the doctor for hip surgery consultation. Last night interestingly enough I had a boom in my head with a jolt within my body and I was wondering if it was something like a stroke, so I looked it up on the internet and seems that, like you said, things like that have no answer yet from doctors. I had shocks like that when I was younger, would wake up with a jolt but it didn't really impact me much. However, interestingly enough, I have very high blood pressure, I started finally taking medication after years of resisting it because I felt healthy enough, but -- the doctor won't go through with surgery on my hip unless my blood pressure is closer to normal. So I've been taking the medication. However, as I said, last night I had a boom sound in my head -- and then a signal of some sort through my body. Now I'm ok. I am wondering however if some calming supplement might help you. I've had to take them sometimes to sleep. Anyway as I said, and like you already said, seems there's no "cure" for this. Just gotta live with it.
@tiffanylynnshank So sorry u deal with this too. My 15 yr old has this too...from head to toes. His makes him stumble. I took a video of him having several in a row and she did not think it was seizure activity...(neurologist). I am an RN and this befuddles me. I have had him home out if school. The nurse at school is not comfortable. But not much ease to get homebound education. Very frustrating. I may try the B12 that some suggested as it is water soluble and goes out the kidneys. I am just starting with neurology but no immediate answers for my son or the school. I am with u!
Connect
Hi Tiffany, Welcome to Connect. It must be awful knowing that you can be resting and along comes the electrical shock from head to toes. There is another discussion you might find helpful to learn what others have shared about their symptoms - Electrical shocks throughout my body.: https://connect.mayoclinic.org/discussion/electrical-shocks-throughout-my-body/.
Since you mentioned Scleroderma I'm wondering if you might find this discussion with a link to the video helpful - Highly recommend Dr. Griffing's Video Q&A about Scleroderma: https://connect.mayoclinic.org/discussion/highly-recommend-dr-griffings-1115-scleroderma-video-a-question/
I'm guessing you have seen a lot of doctors about the electrical shocks with no answers. Have you thought about seeking help at a teaching hospital or a major health facility?