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DiscussionAnyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?
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Replies to "That is a helpful summary of your illness history. Encouraging without downplaying the challenges. 2 questions:..."
I also received Zofran after the MTX. I was on many medications including an antibiotic and an antiviral medication. I think it was the combo of the medicines and you never knew how your body would react. I can’t recall how many days after the MTX, I had to do the oral chemo (Temador). My body was already worn out, and it was just a pile on top of that. OTC meds such as Imodium -D and Metamucil.
I was highly impacted after my brain biopsy. I could not hold a sandwich, use utensils and listed to the left when I would walk. While at Mayo, I had both OT and PT. Everything cleared up with time. If you met me today, you’d never have a clue that I had been so sick. I will say after my almost year of treatments, I had to work on balance a lot. I started with a personal trainer that helped me immensely after I was done receiving treatments.
I did want to comment on something @kippi1950 said about oncologists not using the word cured. At Mayo, they did use the word cured. After being at Mayo, I had to return to my home state and receive treatment by a doctor Mayo conferred with in advance of my return. At my 5 year appointment, she said that you are only cured when you die of something else. I now just say I hit my 5 year mark of being Cancer free. I do think I’m cured of CNS Lymphoma. It’s clear to me that I could develop any other kind of Cancer as anyone can. After you spend a ton of time in the hospital and at a Cancer Center, it’s apparent that Cancer does not discriminate.