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Anyone with PMR have experience with 4th COVID vax jab?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 19, 2022 | Replies (92)Comment receiving replies
Welcome @suetex, I've had 2 occurrences of PMR prior to COVID vaccines but the PMR is currently in remission. I have had both Pfizer shots and the first booster and I got COVID. I had the monoclonal antibody infusion as a treatment and I probably will not get the 2nd COVID booster. I also only had the expected side effects from the vaccines.
There is another discussion where you can read through and learn what others haved shared about their experience using LDN --- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/
Are you still being treated for your PMR and looking to see if low dose naltrexone will help?
Replies to "Welcome @suetex, I've had 2 occurrences of PMR prior to COVID vaccines but the PMR is..."
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I was with another rheumy who didn't diagnose me after 4 yrs and talked the PA into giving me the LDN for the pain. (Also thought it might help the Crohn's, which it did). In 2 days the non moving pain was gone. Finally went to another rheumy who diagnosed me in 15 minutes. (I had brought my labs and told him my symptoms.) I was reponding very well to the pred until 8 mg when I started having some slight symptoms and went to 4 mgs and now it is full blown. I go in tomorrow to give him the bad news. Will cling to the LDN regardless because it did help my Crohn's so much. My last colonoscopy was normal!