I am waiting for treatment for SFN as well. Each year I have something new. Each year I am in more pain. First was numbness so bad it turned to pain. Then, among bodily pain I had a period of mouth sores. I had a low grade fever for approximately 18 months. (99 degrees to 101.6 degrees). My legs got "heavier" and weaker each day. I went to physical therapy for several months that helped a little. I am allowed to have steroid infusions, but they don't seem to be helping anymore as well. I am on pain medication, but breakthrough pain in abdomen and right flank are excruciating. As I type this now, I have had a migraine, and all it's symptoms or nine days. I also have rib cage pain that will not end. My doctor tried to get me into IVIG therapy, but insurance does not like
SFN diagnosis and will not cover. Weeks like these, I struggle to get out of bed and just have a life.